Tourettopia Project

“Tourettopia” means “a peaceful city-state for Tourette syndrome patients”. It is a combination of “Tourette” (Tourette syndrome) and “Topia” (city-state), representing the vision of creating an optimistic, supportive community for Tourette syndrome patients.

In order to provide help to a wider range of Tourette syndrome patients, the Tourettopia Project focuses on popularizing knowledge and providing support for childhood motor disorders including Tourette syndrome. Every child is an angel, and children with motor disorders are loving angels. We focus on scientific communication and research on children’s motor disorders, and are committed to creating an understanding, inclusive and supportive social environment for “children with motor disabilities”, helping them fully develop their potential and grow up better.

The project was jointly initiated by the Soong Ching Ling Foundation and Shanghai Children’s Hospital. It is supported by the “Soong Ching Ling Foundation Tourettopia Special Fund” and the Chenyi Foundation. Through initiating charity programs, popular science activities, free clinics and other public welfare activities, we promote relevant scientific knowledge to the public, while establishing an inclusive interactive community for “loving angels” and their families to support each other to grow better.

Shanghai Soong Ching Ling Foundation

Shanghai Soong Ching Ling Foundation is a public welfare foundation established in 1986 by the China Welfare Institute founded by Mme. Soong Ching Ling herself. Since its inception, the foundation has consistently adhered to Mme. Soong’s care for public welfare and has implemented projects and activities in education, culture, health and medicine and other socially sustainable fields to the benefit of needy people.

Shanghai Soong Ching Ling Foundation
Tourettopia Special Fund

Shanghai Soong Ching Ling Foundation Tourettopia Special Fund, was jointly initiated by the Chenyi Foundation and the Soong Ching Ling Foundation. The special fund is mainly used for research on childhood motor disorders, popularization and assistance projects, aiming to enhance social understanding, tolerance and support for children with motor disabilities.The special fund will continue to support, develop and promote popular science and public welfare activities related to this project, establish an inclusive interactive community for children with motor disabilities and their families, create more opportunities for scientific diagnosis and treatment, and further help them fully develop their potential and grow up better.

Children’s Hospital of Shanghai

The Children’s Hospital of Shanghai is a third-level Grade A children’s hospital integrating medical care, health care, teaching, scientific research and rehabilitation. Its predecessor was the Shanghai Orphanage Hospital founded in 1937 by famous Chinese pediatrician Fu Wenshou and the founder of modern child nutrition, Su Zufei and other predecessors. In 1953, it was renamed the Children’s Hospital of Shanghai, China’s first children’s specialist hospital.The Department of Pediatric Neurology at the Children’s Hospital of Shanghai is the main implement department of this project. As an excellent specialist integrating research and clinical practice, it serves as the leading unit of the Cooperative Group of Multiple Sclerosis and Related Diseases in Children in China, the National Diagnosis and Treatment Center for Difficult Neurological Diseases, the Chinese SMA Diagnosis and Treatment Alliance Center, and the Neuroimmune Diagnosis and Treatment Center of Shanghai Children’s Hospital. In recent years, the Department of Neurology of our hospital has been dedicated to the diagnosis and treatment of motor disorders and research work – gradually deepening through the establishment of a specialist outpatient clinic for motor disorders and undertaking clinical drug research tasks for motor disorders, publishing related SCI papers, and forming a set of treatment plans for motor disorders with few side effects and high patient satisfaction in long-term medical practice, which has been widely praised.